Adrienne Greenway, 25, from Dover, passed away earlier this month from pneumonia, with her funeral taking place earlier this week.
Mourners in attendance included Hollywood stars Jude Law and Sienna Miller, who stunned friends and family at St John's Church in Coleford by turning up to say goodbye.
Tribute: Adrienne Greenway, who suffered from a premature ageing disease, has died from pneumonia. She is pictured here with her father Stephen and mother Allison
The stars met Adrienne at a function run by the Make a Wish Foundation, for which she raised thousands of pounds.
Adrienne's mother Allison revealed that Jude even got up and made an impromptu speech about her daughter during the funeral.
She said: 'Jude has been a tower of strength for us, he really has.
'He wasn't due to say anything at the funeral but he did, he said he had to and he remembered all the happy times they had together.
'She just had this way about her and they became really good friends.'
Adrienne suffered from what doctors thought was a premature ageing disease. Sufferers rarely outlive their teens.
The vibrant young woman had won a string of celebrity admirers for her attitude and charity work, including Stella McCartney - who even designed a dress for her.
Friends: Adrienne Greenway met a number of celebrities in her charity work, including Jude Law and Gwyneth Paltrow. Mr Law gave an impromptu address at her funeral
Allison, who revealed that doctors were re-assessing Adrienne's medical condition after stating it might not be what they first thought, said: 'She loved the good things in life.
'She always said one of the good things about her condition was that she could buy lovely clothes cheaper because she needed children's sizes.
Incredible: Adrienne's mother spoke of how her daughter travelled the world and always put other people first
'She met Stella at a function once and they swapped numbers. Stella called her up and said she was making a dress for her.'
Adrienne planned her own funeral, which was held as a celebration of her life. She was buried in Clearwell before relatives held a wake at a nearby pub.
Allison added: 'She was an inspiration. She inspired everyone she met, she was a beautiful girl.
'Time and time again the doctors had said "this is it, it's time to go now" and she had always come through.
'But she knew and we knew that this time was different. She understood she had a better place to go to.
'It was exactly how she wanted it, she put her head down and curled up with her family there with her."
'She had an incredible life, she has travelled the world but she also loved that she had "normal" friends and was able to go to "normal" school.
'She always put other people first and was conscious of those worse off than her.'
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